Saturday, August 10, 2013

Help Mom Caregiving for 9YO Daughter with Extremely Debilitating Cerebral Palsy ( Who is Terminal) Win Cruise for Family - Please Vote

This is a repost from Maggie's Notebook

Grumpy Opinions notified me that one of his readers and an occasional contributor to his site has an 9-year-old granddaughter with Cerebral Palsy. She has never walked without assistance. She cannot speak without a specialized computer program. Now she has also been diagnosed with “mitochondrial degeneration.” Her name is Alexa Savage and her devoted Mom, Kimberly has been nominated to receive a “caregiver” cruise. If she wins, she can take the whole family along, including Alexa. All you have to do is visit this site and cast a vote for Kimberly Savage. When I voted, I was not asked to donate, didn’t even see a place to donate. It’s just your vote and it will mean so much to this family. Please bookmark the site and vote once a day through August 24th. Here’s what Alexa’s grandfather sent to Grumpy Opinions:
Alexa Savage, 8-years-old To help her mother, Kimberly Savage, win a caregiver cruise (and take along the entire family) click the photo and vote. You will NOT be asked for a donation.
Alexa Savage, 9-years-old
To help her mother, Kimberly Savage, win a caregiver cruise (and take along the entire family) click the photo and vote. You will NOT be asked for a donation.
Alexa Savage is 8 years old. She has had cerebral palsy since birth. She has never been able to walk or speak without assistance, but she can use a computer, and goes to school in 2d grade. She speaks thru a specialized talking computer. She likes to read, but has trouble with math. She likes to swim, but has to watch others run and play. Most days she plays with her video collection on her free time. Her parents do all they can with their time and resources to get Alexa the therapy and support she needs.
Alexa has recently been diagnosed with “mitochondrial degeneration”. Basically, the “engines” inside her cells that process nutrients are breaking down. As new cells grow, there are fewer and fewer working mitochondria. Eventually this will mean that she can’t sustain life and will go into seizures and her heart will stop. We don’t know how much longer Alexa may last. She is already 3 years past the doctors’ best-case estimates.
Her parents would like to take Alexa on one last adventure, a cruise, as long as she is still functioning rather well. It would mean a lot to the entire family. Alexa would be able to take along her sister and brother on this cruise as well, which would do them all a lot of good. We need a little help from you, however. Please do all you can. Click on the link below and that is all we ask. No donation, just a vote. This is not a phony gimmick or some marketing ploy, but a real request to help a real girl and her family, and it won’t cost you anything. Just a vote.

Please vote once a day till August 24.
The following was written by Alexa’s grandfather at the Caregiving Cruise website:
My daughter, Kimberly Savage, has been caring for her 9 yr old daughter with Celebral Palsy (who doesn’t walk or talk) for 9 years. In addition she is now working 40-60 hrs a week at a full time job since her husband, Jason, was layed off in January 2013.
Alexa requires 24 hr assistance as she can not do anything for herself. My daughter, works like Superwoman to accomplish everything she does everyday. She’s an incredible human being. Her stress level is beyond the stroke level and she so very very much deserves this time away.
In addition she has two other school age children ages 6 and 11. She is constantly helping others with special needs to get things to help them. She is a huge advocant for others. She goes way out of her way to help so many children and adults, I’d love to think someone could help her. God bless you and your caregiver award committee.
Please vote every day. There is time to get Mrs. Savage to the No. 1 spot from her current 91. Bloggers, please feel free to take this post and use it from your site to help this family. 

1 comment:

HMS said...

Teresa, we'd like to invite you to become one of our Authors in Alexandria. This invitation has been extended to you by email as well.

In addition to posting on anything you wish, as you desire, you may of course mirror posts you've already written from here or elsewhere to gain a different or additional audience or for any other reason that appeals to you.

If you think you might be interested, contact me through Alexandria or by return email via this comment and I'll forward our formal invitations for you to look over and return if you decide to proceed.

Come contribute your perspectives and opinions to the ongoing conversations there or, even better, start some new - and different - ones of your own.

I look forward to hearing from you.

H. M. Stuart
Alexandria